a community of caregivers

It was just over an year ago that I felt alone as a caregiver. Not so now. The community of caregivers is scattered around me, people performing a role that demands extreme empathy and involves overwhelm.

Yes, caregivers end up living a life with priorities and perspectives very different from others around them.  But we can connect with each other, share tips, share both the joys and travails of caregiving. We can be there for others who are just embarking on this journey.

And through honest sharing of our experiences, we can make the journey easier for others.

A few weeks ago, through a comment on my blog, I connected with Ekta Hattangady from Ahmedabad.

Ekta was thrust into a caregiving role for her mother (an Alzheimer’s patient) at an age when most girls are handling adolescence problems and excitement. She was 13 when her mother (then 42 years old) was diagnosed as suffering from Alzheimer’s Disease. Her mother died after six years, and these six years of caregiving have left Ekta with experiences that have stayed close to her heart. The deep empathy required, as well as the sense of overwhelm and loneliness have made Ekta determined to do something for care-givers. She hopes she can help others who suffer as she did.

Read her honest and touching poem on caregiving

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About Swapna Kishore
I'm a writer, blogger, and resource person for dementia/ caregiving in India. I have also been a dementia caregiver for well over a decade, and am deeply concerned about dementia care in India; on this blog I share my personal caregiving journey, my experiences as a resource person for dementia care, and musings on life, aging, dementia in India, and such sundries. More about me and the work I do for dementia care. For structured information on dementia, for discussions, tools and tips on caregiving issues, for resources in India, and for caregiver interviews, please check my website http://dementiacarenotes.in (or its Hindi version, http://dementiahindi.com). For videos on dementia caregiving (English and Hindi), check the youtube channel here.

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