About me and this blog
I’m Swapna Kishore; I live in India and am a writer, blogger, and resource person for dementia/ caregiving in India. Through this blog, I share my personal stories, observations, and aha! moments related to my experiences and concerns on dementia and care in India.
My mother suffered from dementia. For well over a decade, her care occupied a significant part of my life and mind-share. It affected my choices, my priorities, my social circle (or lack thereof). It made me introspect about weird things like thoughts and memories and identity. I started this blog to share my experiences and insights, and also the mistakes I made as a caregiver. Caregiving can be isolating, and during my caregiving days, I used this blog to connect with and help others, and share my musings and concerns.
After my mother passed away, I have continued to blog, sometimes sharing more memories of te past, and at other times writing about my experiences and thoughts as a resource person for dementia caregivers. Blogging is rather sporadic now.
As I am deeply concerned about dementia care in India. I maintain an extensive resource site to help dementia caregivers in India: Dementia Care Notes. (The Hindi version of the site is at: Dementia Hindi). I also have a youtube channel for English and Hindi videos for caregivers. I have explained what I do in the sphere of dementia care here: The dementia care work I do. And if you want to help dementia home caregivers in India, do check out this section of ideas and resources for volunteers.
Oh, and I’ve also got some personal dementia-related videos on Youtube (English and Hindi), in the Youtube channel here.
If you are interested, you can see the dementia/ care resources I have prepared in this section:
- Websites for dementia care in India (English, Hindi)
- Videos for dementia care in India (English, Hindi)
- Documents/ presentations for dementia care in India (English, Hindi)
- Other published dementia-related articles/ interviews
I have also put together my ideas on what concerned persons can do, and these are available in this section:
- Understand dementia and care in the Indian context
- Overview of current and future prevalence, care challenges, and possible actions
- India’s cultural context and its impact on care
- Apply available dementia/ caregiving material to the Indian context
- Introduction: dementia home care in India (includes download)
- Understand caregiving realities, issues, challenges
- Policies, schemes, laws in India relevant for the dementia domain
- Action Areas to Contribute to, and Possible Approaches
- Community-level work: A Dementia-Friendly India
- Focus: Improve Dementia Awareness
- Focus: Create Dementia Services and Products, Facilitate Support Forums
- Project ideas for students, artists, and others
(For the more curious, I have a personal website that gives details about me and my other interests and activities.)