Listening to caregivers, respecting them, supporting them: a follow-up post

Some weeks ago, I wrote a post on non-judgmental listening being a form of support ( Listening to caregivers, respecting them, supporting them), and I was foolish enough to say I’ll do a follow-up post to share whatever feedback I’d got/ any additional thoughts, so here it is, a post to tick one more item on the three-mile long disaster called my to-do list.

Through the “listening” post, I shared my experiences and perspective as a dementia caregiver as well as a volunteer helping other dementia caregivers. I wanted to know how other caregivers felt about what I’d written–do they agree or do they have a different view? I wanted to share my thoughts and opinions with concerned non-caregivers (friends, colleagues, volunteers) and get their perspective too. So I asked for feedback on the post in various forums where members included caregivers and volunteers.

Most of us, when we read something, do not leave any comments, leaving the writer unaware of our reaction. Did we agree? Disagree? Did we benefit from what was said, or did we find it a boring ho-hum rehash of old stuff? Did any of it matter at all? This silence of the readers means that the writer has no input to consider, and refine the next article. Then we read another boring article by the same writer and say, hey, she’s still a bad writer 😦

I get feedback sometimes–as comments on the blog, through the contact form, and emails sent directly to me–and I learn from every person who writes in. When I invited comments on the above-referred post, I was hoping to get more data.

I can probably divide the feedback I got in two broad categories (1) concerned persons who are non-caregivers and (2) caregivers (current and ex-caregivers) .

Read the full post here